Before a massive overhaul of the disability scheme, families say plans are already being slashed or rejected as they are told to wait for support programs that do not yet exist

Aidyn is eight. For anyone who doesn’t know him well, his speech is impossible to understand. He has level-two autism, an intellectual disability and an eating disorder. Two years ago, he had a gastrostomy tube inserted into his stomach because he was malnourished.

His coordinator and advocate, Jayde Parker, notified the national disability insurance scheme of a change in the family’s circumstances and asked for support for Aidyn’s mother, who also has autism.

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